Category: mental illness

3 Books About Mental Illness That I Recommend

Living with mental illness, I sometimes get asked which are the really good books to increase compassion and on what it’s truly like to struggle day-to-day. My favorite three are as follows:

madness marya hornbacher

Madness by Marya Hornbacher pulls no punches in giving you a ringside seat into the devastating illness that is bipolar disorder. The most serious form is when psychotic episodes appear which I found similar to schizophrenia. The major plus for this read is that mental distress particularly during her hospitalizations spills from the page so effortlessly.

the center cannot hold elyn saks

I found Elyn Saks’ The Center Cannot Hold after watching the author’s TED talk, which is fascinating and very informative. I have the utmost admiration for the writer who, although clearly affected by the symptoms of her illness, didn’t allow it to define her or stop her from doing what she wanted to do with her life. It’s a truly honest, heart-wrenching account.

kay redfield jamison an unquiet mind

Kay Redfield Jamison’s An Unquiet Mind is another book about bipolar and not schizophrenia but the turbulence is similar and the fact that she fought meds for so long until she finally succumbed to the realization that they are indeed truly necessary and lifechanging so that sufferers can now fully function with their assistance in our lives. Jamison is a psychologist so she writes the scientific aspects in an easy to understand, charming witty and all too human way.

Course of Illness (Schizophrenia)

chart symptoms

My psychiatrist can’t confirm any possible course of my illness; but he does think that due to my later onset and of my being female that it will be milder. At this point on my vigorous medication regimen, I’m having essentially no positive or negative symptoms. He doesn’t think that there will be any deterioration in behavior or cognition. However, potential short-term working memory problems may arise and he also thinks that I may continue to have subtle peculiarities in my language (negative symptom).

Although, I’d have been the first to say that I never got depressed just anxious, it has been determined that I have suffered from depression and may continue to do so. My depression is an anxious case not the sad states. Fertility and fecundity are a non-issue for me as I’ve already raised my four kids. And my doctor doesn’t think that life span will be decreased but I am at risk for diabetes and high blood pressure due to the medication side effects.

As for the meds, I have to be symptom free for a year before he will cut back on any one or better yet discontinue all. He worries about the statistic of 90% recurrence within five years of stopping meds. So, that was the extent of my discussion with my doctor today.

Relapse

angiegrey

One surefire way to go into relapse is not taking medications. Why or how would that occur? Degree of insight into the illness, disorganized thinking (forgetfulness of a complex meds regimen), prescription costs, negative side effects, or stigma towards taking anti-psychotics. For the longest time I thought that I was in control of my problem and that nothing really was wrong: I wrote the symptoms off as other things (PTSD or anxiety). Then I took meds for another more acceptable problem (depression). I shouldn’t have hidden my symptoms for so long; but I was afraid.

What are other possible reasons for a possible relapse? Susceptibility to stressful interpersonal conflicts, adherence to the complex meds schedule, or discouragement are but a few. My family knows to watch for the signs of relapse: withdrawal from social situations, changes in sleep patterns or eating habits, staying focused, controlling behavior, being obsessive or compulsive, fear of common things or places, strange or risky behaviors, feeling targeted, or definitely seeing or hearing things that aren’t there.

It is difficult enough with all the possibilities of relapse; but the one we shouldn’t have to worry about is stigma. Myths and misperceptions are preventable.People with schizophrenia aren’t serial killers or don’t have split personalities. Shame, humiliation, and/or isolation need not be another things that people with schizophrenia need to cope with in addition to all the other reasons for relapse.

Positive vs. Negative Symptoms for Me

strengthThe positive symptoms (in addition to reality) of schizophrenia are: hallucinations (see and hear things), delusions (false beliefs that defy reasoning), paranoia, disorganized thinking,and grandiosity (believing that I have supernatural powers),

And the negative symptoms (lacking from normally considered behavior) are: lack of emotion, slow speaking, poor hygiene, impaired memory, poor concentration or decision making skills, limited social functioning, lacking motivation, and inability to experience enjoyment in things I once found pleasurable.

I’ve highlighted the ones that I experienced. In addition to those, I experienced sleeplessness, OCD, depression, and high anxiety. All of my symptoms have been treatable. I do still experience hallucinations when the stresses in my life are too great. Things haven’t gotten easier for me; instead, with the aid of medication, psychotherapy and my support structure, I’ve learned what is and isn’t real. I can control my emotions but I still have trouble relating to other people because I fear that my symptoms may arise in their presence. But the key is that I am in control and feel empowered.

Contrary to myths, as a person with schizophrenia, I don’t have developmental disabilities, violent tendencies, or a split personality. Not being in contact with my birth family, I don’t if genetic susceptibility or environmental factors (nature or nurture) played a role. I was diagnosed with PTSD years back due to physical and emotional trauma as a child; but I believe those are irrelevant at this point in my life as I’ve gotten over and forgiven all responsible. I truly hope they are as happy as they can be in their own part of this world.

At this point, the medication works but isn’t without side effects. The worst of all is the tremors. However, restlessness comes in a close second. All in all, I prognosticate that I will be in full remission (symptom free), with the aid of medication, within six months time.

Suicidal Tendencies

Hi, my name is Angie Grey and I attempted suicide at the age of seventeen while I was pregnant. It was within six months after being released from the psychiatric ward. I jumped off a train bridge in Bismarck, North Dakota and was rescued by a boater in the water beneath me. I didn’t realize how lucky I was for him to be there that late at night because I didn’t know how to swim and was sure to die. For a long while, I was okay with living up until May of 2009. At that point, I had a suicide date in mind. Fortunately for me, I found Pathways Health Crisis Center in Minneapolis. At that time, my next door neighbor, Angela had committed suicide and I was in full blown delusion. For years, the dead woman living in my home urged me to take my life just as she did my neighbor. My grandiosity was that I could see through walls to the adjacent townhome. I saw my neighbor laying in her bathtub, with pill bottles and a bottle of wine in hand. All the while, the dead woman who lives inside my home was telling me that life wasn’t worth living. Most recently, during my psychotic break, the dead woman said my new neighbor is planning on taking his life too; but this time it will be with a gun and due to the constant hip pain he is experiencing. She (the dead woman) continued to tell me and show me how obvious it is that life isn’t worth living. Look at all the suffering. Thanks to my medicine, I see this isn’t real. Fortunately for me, I have a strong support network and Pathways as well. I feel bad for the others that don’t!

About Me and Schizophrenia

My onset of schizophrenia didn’t occur until long after I’d left home. I was twenty-six years old and just starting college when the hallucinations began. During Fall semester in 1996, I met a fellow student named Holly. She said that our Psychology professor liked me.It wasn’t until I started having dreams of my being murdered that my life with Holly and my professor became more chaotic. It was sometime in November 1996 that the first nightmare occurred. In the dream, I went for my daily walk in Normandale Lake Park. I was on the south side when my Psychology instructor saw me and smiled. I turned away embarrassed and when I looked back he was so close then I saw his face. He was raging mad and lunged at me. I saw my long blonde, curly hair fly in front of my face. Then I felt his hands struggling with me and then he was on top of me. I didn’t have time to scream in my dream; however, I always woke screaming.

Holly didn’t like me talking about my dreams. It disturbed her because she thought that it couldn’t be me since I never had long blonde hair. Instead, the thought it was an older female that I knew back in high school. Holly thought that maybe I subconsciously wanted that former acquaintance dead but she was wrong. I didn’t. I swear. As the dream progressed, I realized that it wasn’t me in the dream but Holly. That is when she started getting more upset about me talking about my dreams, so I stopped sharing them with her.

Anyway, our college lives became anxiety-ridden, especially since our Psychology teacher started following us around. He was also faculty advisor so he was friends with everyone, meaning he was everywhere: in and out of our other classrooms. Then the maintenance men started watching us, too, particularly me. It didn’t matter where I sat (lunchroom, out front, in the Japanese garden, on hallway floors, in the library or computer center), our Psych professor would find me.

The dreams went on for months when one day I was watching television while doing dishes. At that moment, my body froze. I saw her—the blonde with long hair that was being murdered in my dream—and knew immediately who it was. It was my friend, Holly! The news report said that a pedophile had killed her in Normandale Lake Park. It couldn’t be right.

During my psychotic break, I was hallucinating visions and voices as well as deep in delusion. I was seeing a dead woman in my house as well as my deceased grandma and aunt. In addition, I thought I could walk through as well as see and hear through walls to my adjacent neighbors townhouse. Plus, I was deep in paranoia in thinking someone was following me wherever I went.

My psychotic break or nervous breakdown occurred over a six month period. Initially there were confusing voices and overwhelming smells but that progressed into debilitating paranoia, delusion, and non-stop hallucinations. I refused medication because I thought it would cloud my thought processes which were relaying danger, danger, danger…. I was worried that my family and I wouldn’t be safe if I took the medication. I thought the dead woman that lives inside our home would cause us harm. Plus I was concerned that it (meds) would control my thoughts and take over our wellbeing so that we couldn’t deal with the watchers. In reality, it was all unreal. In the emergency room, I was forced to take Seroquel which knocked me out. It was in the moments upon awakening  that I realized all the voices, visions, smells, and sounds STOPPED. It was quiet for the first time in a long while. Fortunately, for me, family members made certain that I stayed on the medication regimen. Yes, it has gone through changes where I’ve had to switch meds but all in all the majority of the hallucinations and delusions have stayed away. Stressors still bring on bouts but for the most part the drug therapy helps. At first, I kept in mind that I could always stop the meds and bring back the positive hallucinations; but now I know the bad will come along with the good. While I miss the visions of my deceased grandma and aunt, I don’t miss the bad spirits.

 I’m also an enrolled member of the Sisseton-Wahpeton Oyate. Thanks in part to fantastic foster parents, sassy social workers, and outstanding teachers, I’m also a family-focused parent of four wonderful young adults. I’ve self-published one memoir under my own name and four fiction novels under a pseudonym, Peyton Mathie. Those accounts were based on my life stories. Although I’m a native of the Lake Traverse reservation in South Dakota, I  lived in Brooklyn, New York off and on throughout my childhood. Currently, I reside in Eden Prairie, Minnesota with my family. My hobbies include yoga, MBSR, camping, budget travel, and painting.

Note: The pseudonym was derived from the first name of my daughter’s childhood friend and the surname of a coworker at approximately the same time frame. In one I saw signs of my past and the latter, hopefully, my future.

Outsider in My Own Culture

whereveryougothereyouareWherever I go in public, it seems like I’m an outsider. First of all, I’m part Native American; therefore, I’ve never been considered completely “white”. Secondly, due to my lighter appearance, I’ve never been thought of as American Indian. Then there is where I live–Eden Prairie; it is a special place where I also don’t feel as if I belong. Neighboring suburbs poke fun at Eden Prairie for being too affluent, arrogant and ignorant. And, I don’t know if it is due to my mental illness; but I find myself out of place wherever I go in public, especially so in my own community which is why I take so many classes in adjacent towns like Chanhassen, Bloomington, or Minneapolis.

It makes me think of Jon Kabat-Zinn’s book Wherever You Go, There You Are. I’m comfortable in my own skin, just not when I’m around other people where I have to communicate my intentions or opinions. I’m at peace on my own, and very mindful, perhaps too mindful. I’m not looking for a quick fix, as I don’t believe such exist. I’m the type of person who can get too lost in a good book or basking in the moment. Looking inwards can become surreal. So how can I feel like an insider as opposed to an outsider without losing touch with reality? I guess I have to turn back to another book that I frequent, Richard Carlson’s Shortcut through Therapy, which really isn’t a quick fix as the title implies.  His simple yet profound ten steps keep me from those radical “thought tornadoes” (thinking traps) as Kathy Emerson-Marshall of the National Resiliency Resource Center refers to them. My favorites of Richard Carlson’s steps are: “know your own mood, letting go of negative mind-states, count your blessings, and now is the time to live”. Doing all of his ten things, especially counting my blessings such as the connectedness of my immediate family and support structure is what gets me from one day to the next.

Do you prefer being called schizophrenic or mentally ill?

mentallyhealthyI was asked this question yesterday and I was quite uncertain as to how I felt about the terminology in that given moment. After some thought, I’m not concerned about how others refer to me. Their words would be a reflection upon them and not me. I do recognize that I have a chronic mental illness which requires ongoing medication and my diagnosis is schizophrenia. I’m also quite aware of the stigma of such terms and that others in my situation have strong preferences such as being called clients at the upscale psychiatric office where I’m seen. Obviously, the hospital refers to us as patients but when in doubt ask the person who is affected. They/I/We are human and like any other would appreciate the opportunity for input in the matter. Plus, we may want the chance to get it out there on the table instead of hiding it from our everyday life.